Seeking in Cycles: How Users Leverage Personal Information Ecosystems to Find Mental Health Information

Information is crucial to how people understand their mental health and well-being, and many turn to online sources found through search engines and social media. We present the findings from an interview study (n = 17) of participants who use online platforms to seek information about their mental illnesses. We found that participants leveraged multiple platforms in a cyclical process for finding information from their personal information ecosystems, driven by the adoption of new information and uncertainty surrounding the credibility of information. Concerns about privacy, fueled by perceptions of stigma and platform design, also influenced their information-seeking decisions. Our work proposes theoretical implications for social computing and information retrieval on information seeking in users' personal information ecosystems. We also offer design implications to support users in navigating their personal information ecosystems to find mental health information.

• Health & Bioscience

• Human-Computer Interaction and Visualization